博客

Latoya Minott Smikle, a mother of five, has turned her personal tragedy into a mission to support others battling sickle cell disease. During her fourth pregnancy, Smikle discovered that her newborn son, Aiden-Jon Amir Hall, had sickle cell anaemia, a severe genetic blood disorder. She also learned that she, her partner, and their three other children were carriers of the sickle cell trait. After a courageous five-and-a-half-year battle, Aiden-Jon passed away in 2022 due to complications from the disease. In his memory, Smikle established the Aiden-Jon Amir Hall Foundation, aiming to raise $1 million this year to provide financial aid to six individuals living with sickle cell disease and to raise awareness about the condition. Smikle’s journey began when she lived next to a family affected by the disease, witnessing their struggles firsthand. She never imagined she would face the same reality. Aiden-Jon’s diagnosis was followed by the shocking revelation that her entire family carried the trait. The disease, which causes red blood cells to become rigid and crescent-shaped, leads to severe pain, anaemia, and organ damage. Smikle’s life became a cycle of late-night hospital visits, financial strain, and emotional turmoil as she cared for her son while balancing work and family responsibilities. She highlighted the lack of empathy and systemic gaps in support for sickle cell patients and their families. The Sickle Cell Unit at the University of the West Indies, Mona, provides essential services but remains underfunded. Smikle’s foundation seeks to address these challenges by offering financial assistance and building a supportive community. She has identified six beneficiaries, including the child of a single father needing surgery. A fundraising dinner in October aims to meet the $1 million target. Smikle believes her son’s life, though short, had a profound impact, and she is determined to continue his legacy by helping others. ‘I want to help someone else’s child live longer and healthier,’ she said, reflecting on her mission to bring hope to those in need.

As Prostate Cancer Awareness Month draws to a close, the Jamaica Observer conducted a street survey in New Kingston to gauge public sentiment on prostate cancer screening. Prostate cancer remains the most prevalent cancer in Jamaica, with 1,561 new cases reported in 2020. Early detection through screening methods, such as digital rectal examinations and prostate-specific antigen (PSA) blood tests, is crucial for effective management. In Jamaica, screening is recommended starting at age 40. However, public attitudes toward these screenings vary widely. Many respondents expressed positive views, emphasizing the importance of health checks. One individual stated, ‘You have to feel good about checking your health to know what’s going on in your system.’ Another older participant added, ‘I have no reservations; it’s about knowing your health status.’ Yet, discomfort and stigma remain significant barriers. Younger men, in particular, cited ‘comfortability’ as a deterrent, with one admitting, ‘I wouldn’t do it personally.’ Others expressed unease with the digital rectal examination method, with one man stating, ‘I don’t think it’s appropriate for someone to be examining you through your anal.’ An older gentleman noted that age influences acceptance, explaining that younger individuals often associate the procedure with stigma. A woman highlighted societal perceptions, saying, ‘They don’t want to be seen as gay.’ Despite these challenges, most respondents agreed that increased education and open dialogue could help reduce stigma and encourage more men to undergo screening. Many pledged to support others in taking this vital step for their health.