Latoya Minott Smikle, a mother of five, has turned her personal tragedy into a mission to support others battling sickle cell disease. During her fourth pregnancy, Smikle discovered that her newborn son, Aiden-Jon Amir Hall, had sickle cell anaemia, a severe genetic blood disorder. She also learned that she, her partner, and their three other children were carriers of the sickle cell trait. After a courageous five-and-a-half-year battle, Aiden-Jon passed away in 2022 due to complications from the disease. In his memory, Smikle established the Aiden-Jon Amir Hall Foundation, aiming to raise $1 million this year to provide financial aid to six individuals living with sickle cell disease and to raise awareness about the condition. Smikle’s journey began when she lived next to a family affected by the disease, witnessing their struggles firsthand. She never imagined she would face the same reality. Aiden-Jon’s diagnosis was followed by the shocking revelation that her entire family carried the trait. The disease, which causes red blood cells to become rigid and crescent-shaped, leads to severe pain, anaemia, and organ damage. Smikle’s life became a cycle of late-night hospital visits, financial strain, and emotional turmoil as she cared for her son while balancing work and family responsibilities. She highlighted the lack of empathy and systemic gaps in support for sickle cell patients and their families. The Sickle Cell Unit at the University of the West Indies, Mona, provides essential services but remains underfunded. Smikle’s foundation seeks to address these challenges by offering financial assistance and building a supportive community. She has identified six beneficiaries, including the child of a single father needing surgery. A fundraising dinner in October aims to meet the $1 million target. Smikle believes her son’s life, though short, had a profound impact, and she is determined to continue his legacy by helping others. ‘I want to help someone else’s child live longer and healthier,’ she said, reflecting on her mission to bring hope to those in need.